Desperate message for Bush from sick 9/11 responders
United front heads to D.C. to press for more funding to treat suffering heroes
http://www.silive.com/news/advance/index.ssf?/base/news/116955722422530.xml&coll=1
Tuesday, January 23, 2007
By HEIDI J. SHRAGER
ADVANCE CITY HALL BUREAU
A retired NYPD detective, an ironworker and a dead cop's father have a message for President George Bush, who will give his State of the Union address tonight.
We saved lives. Now help save ours.
Rescue workers who developed lung diseases after breathing poisonous dust at Ground Zero are heading down to the president's State of the Union address today, in a bid to pressure federal officials to fund the growing medical needs of thousands of New Yorkers who heroically sprang into action after the Sept. 11, 2001, terrorist attacks.
The trip comes as medical experts and New York's congressional delegation are warning that $40 million in federal funds for the city's two main treatment programs is fast running out. "Our money will run out over the next several months," said Jacqueline Moline, the director of the World Trade Center Medical Monitoring and Treatment program at Mount Sinai, in which 19,000 first responders are registered.
New Yorkers traveling to Washington, D.C., today as guests of the New York congressional delegation include the family of the late NYPD Detective James Zadroga, who was the first confirmed post-9/11 death. Also heading to the capital is Ceasar Borja Jr., the son of Ceasar Borja, a retired NYPD officer now in critical condition at Mount Sinai Hospital with pulmonary fibrosis, the same disease that killed Zadroga just over a year ago.
BIPARTISAN BACKING
"We want people to have to look into the eyes of these men and women and then say, 'No, it's not our responsibility to make sure you have the health care you need to deal with these illnesses that came about because your country was attacked,'" said Sen. Hillary Rodham Clinton (D-New York).
The junior senator and presidential candidate spoke during a news conference at Ground Zero yesterday, surrounded by other congressional members, medical experts and first responders. She gestured to her invited guest, 21-year-old Ceasar Borja Jr., saying federal funding is needed to treat patients like his father. The Queens retired officer toiled for 16-hour shifts at Ground Zero for five months, and must now vanquish a lung infection before he can be placed on the waiting list for a necessary lung transplant.
"In speaking with medical experts, it is absolutely clear that many of these victims will only survive if they are given lung transplants," said Mrs. Clinton.
Officials renewed their call for Bush to include in his budget $1.9 billion over the next five years. "This is not a huge amount of money in federal budgetary terms," said Sen. Charles Schumer (D-New York).
Standing in a sea of Democrats, Rep. Vito Fossella (R-Staten Island) said he repeated the request to the White House budget director on Friday. "On the eve of the State of the Union, the one thing I was taught as a kid is that in this Union we take care of our own first," he said. "This is not a Republican or a Democratic issue so much as it's the right thing to do."
HIGH COST OF CARE
The requested amount is largely based on an internal document from the U.S. Dept. of Health and Human Services, obtained by Rep. Carolyn Maloney (D-Manhattan/Queens). The document estimates an annual cost of $256 million for the care of the 32,000 people now registered in the city's two main programs. The first program is for 14,000 firefighters and the second is for the Mount Sinai program.
Dr. Moline said her clinic, along with the five sister hospitals in the program, are gearing up to send letters out to upwards of 4,000 patients who only just began getting treatment last September. "It sickens me, as a physician, that I am in this position."
Dr. Moline said she expects the number of people needing treatment to keep growing, as diseases like pulmonary fibrosis emerge in more people.
Although unexplained, experts say the disease is the lung's reaction to injury, whereby thick scar tissue builds up in the lungs, blocking air sacs and gradually suffocating victims. One possible precursor is sarcoidosis, an autoimmune disease with which Eltingville resident Edward Wallace was diagnosed in 2002. The retired police detective was denied a disability pension even though he spent months at Ground Zero directly after Sept. 11. He now sees at least five separate doctors.
"The price tag is phenomenal," he told the Advance in December. Of his private healthcare provider, he said, "It's just a matter of time before they cut me off."
John Sferazo, an ironworker from Long Island, and another guest of the New York delegation, believes his work at Ground Zero reduced his breathing capacity and triggered other illnesses.
He hoped his presence tonight will make a difference.
Said Sferazo, president and co-founder of Unsung Heroes Helping Heroes: "This tragedy took 3,000 lives and continues to take our lives today."
Heidi J. Shrager covers City hall for the Advance. She may be reached at
[email protected].